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Organizations for you

The nonprofit organizations listed below may be helpful to you in managing patients with TGCT. Browse their websites for treatment guidelines, sarcoma centers, and the latest information for you and your patients.

National Comprehensive Cancer Network® (NCCN®)

A not-for-profit alliance of 31 leading cancer centers devoted to patient care, research, and education. NCCN is dedicated to improving and facilitating quality, effective, efficient, and accessible cancer care so patients can live better lives.

National Organization for Rare Disorders (NORD)

A patient advocacy organization for people with rare diseases, as well as the organizations that serve them. Offers services for patients, medical resources,
and more.

Sarcoma Alliance logo

Sarcoma Alliance

Helps improve the lives of people affected by sarcoma. Provides resources that help people access quality care, guidance, educational materials, and emotional support.

Sarcoma Alliance for Research Through Collaboration (SARC)

A nonprofit group founded by physicians to support research for preventing, treating, and curing sarcomas. Offers resources for patients and medical professionals.

TGCT Support

Enhances treatment options and quality of life for patients who have TGCT through patient-powered research, education, empowerment, and global advocacy efforts.
A program of The Life Raft Group, which is a nonprofit organization providing
support to patients with rare diseases through information, education, and innovative research.

Sarcoma centers

Specialized expertise located in sarcoma centers can help support your patients as they live with TGCT.

Sarcoma Alliance logo

Sarcoma Alliance Sarcoma Centers

Medical centers and hospitals specializing in sarcoma in
the United States.

Organizations for your patients

Share the information below with your patients who are looking for TGCT community and support.

CancerCare logo

CancerCare

The leading national organization providing free, professional support services, including counseling, support groups, educational workshops, publications, and financial assistance, to anyone affected by cancer. All CancerCare services are provided by oncology social workers and world-leading cancer experts.

National Organization for Rare Disorders (NORD)

A patient advocacy organization for people with rare diseases, as well as the organizations that serve them. Offers services for patients, medical resources,
and more.

Sarcoma Alliance logo

Sarcoma Alliance

Helps improve the lives of people affected by sarcoma. Provides resources that help people access quality care, guidance, educational materials, and emotional support.

Sarcoma Patients EuroNet logo

Sarcoma Patients EuroNet (SPAEN)

The international network of Sarcoma, GIST, and Desmoid Patient Advocacy Groups aims to improve the situation for sarcoma patients around the world by providing information and support and by raising awareness of sarcomas.

TGCT | PVNS | GCT-TS

Website offers information for patients about TGCT and its potential impact. Includes content that explains TGCT, its potential treatment, and helpful resources.

TGCT Support

Enhances treatment options and quality of life for patients who have TGCT through patient-powered research, education, empowerment, and global advocacy efforts.
A program of The Life Raft Group, which is a nonprofit organization providing
support to patients with rare diseases through information, education, and innovative research.

Fast-fact sheets

Download these informative, easy-to-understand sheets for you and your staff.

Diffuse TGCT fast facts

This handy resource provides key facts about
diffuse TGCT and can be used to support your discussions
with patients about their condition.

Download
Localized TGCT fast facts

This handy resource provides key facts about
localized TGCT and can be used to support your discussions
with patients about their condition.

Download
Discussion guides

Download the appropriate guide to aid in your dialogue with new patients who
have TGCT.

Orthopedic oncologists Download
Medical oncologists Download
Orthopedic surgeons Download
My TGCT treatment history

Download this interactive PDF, and offer it to your patients as a way to help them
keep track of and record notes about their TGCT treatment.

Download